play lessons

November 12, 2016 § 6 Comments

This morning I chauffeured both children to a robotics meet. We were there for my son, that he might support his team, but I quickly lost my daughter to new friends and a budding interest.

We fell into easy conversations as the teams competing worked collectively through individual challenges.  They were patiently competitive, generously cooperative.

I was reminded of another day, years ago at a neighborhood park. A spontaneous collaboration between sand and water with young children whose age, skin color, needs and abilities were as diverse as their language. That day, like today, I marveled at the partnership and individuality of their effort.

Today I’m giving thanks for the lessons in play, the ingenuity of arts and science that foster appreciation for creativity and community. The universal language of respect and curiosity that invites hope with humble gestures of kindness and bold acts of imperfect effort.

If you want to see tomorrow’s leaders at their best, offer them an uncertainty and then give them room enough to play at creative solutions.

raising sheldon

January 26, 2016 § 8 Comments

If you have a child on the Autism Spectrum you are probably pretty comfortable with unexpected statements – some call them blurts.

I don’t love the word blurt, it sounds more like a bodily function and implies an absence of control that interrupts the peace leaving a foul impression.

Around our home unexpected statements are what keeps us on our toes, they create interesting tangents and spontaneous laughter. I’ve come to appreciate the honesty of my son’s speech and the innocence of his errors.

When he was little, my son would spout extravagant facts he’d memorized from the mountains of books that littered his days. I spent a decent amount of time verifying information with my own research so that I could participate in his interests.

This same natural ability created an entire vocabulary of funny one-liners from favorite books and movies. My son and husband could hold an entire conversation with direct quotes taken out of context.

Most days my son’s comedic timing and memory for details is a gift. Some days it’s a burden.

This week a store manager who my son’s school partnered with for practical exercises in social skill building determined it was too much work after my son commented on a customer’s groceries.

If you’re wondering what he said, I’m not telling. I don’t want to shame my son, the customer, or the store manager.

What he said, specifically, isn’t the issue. Some of his statements would make you laugh and others would make you scratch your head. There was one statement that I could conceive was mildly offensive, but most of them were simply misplaced.

I wish I could explain to the manager that my son’s blurts are more exaggerated when he’s nervous; that he will work over-time, verbally, to impress a stranger or make them laugh. Another week and the anxiety might have eased, reducing the instance of unfortunate efforts at humor.

I understand, I do. Unexpected statements present challenges, but they are also opportunities.

What might have happened if the manager stood up for the teenage boy with special needs and communicated to his customer and community that “we’re working on it.” What an awesome message one business might have made to a population of children, parents, and strangers of tolerance and empathy.

The last business did.

We’re going to be ok. Actually, we already are, but I’m sad for the store and it’s customers that they didn’t model the commitment their partnership with special needs families implies. Relationships require an investment in one another, work.

My son isn’t Sheldon Cooper, there is no laugh track to his impressive library of memorized facts or social fumbles. In the real world his embarrassments are not so easily written off and the laughter isn’t always kind.

I spend a lot of time talking to my son about others’ expectations, he’s spent years navigating social norms with the forced attention of a second language; to understand and connect in a world that does not always conform to his expectations.

This morning I wanted to speak on behalf of my son, hoping that maybe someone else might consider an unexpected statement an opportunity  to exercise a different perspective and, maybe, a little patience.

to my son

October 16, 2015 § 6 Comments

I gave up. I’m not sure I’ve ever named my cowardice, it’s far simpler to languish in a prose of possibility, but it’s true. I stopped believing school could be a safe haven for your differences and so I hid behind empty promises and hollow confidence.

Things will get better. 

Except, they didn’t.

Each school year I would hold my breath for the first kindness that offered sanctuary for my doubts and then balance my fears on the fragility of a single offering. A kind teacher, a patient administrator, a passionate aide. One person. Every year.

Inevitably something would go wrong; an intolerant teacher, a disconnected policy, an ill-prepared aide. We learned to pretend our way through difficult days with a detachment to our community. Surviving is a poor substitute for thriving.

I built invisible walls to ward off disappointment, but rather than guard my joy they invited bitterness and complacency for an unacceptable status quo. I could no longer open my heart to trust in something better; my faith was frayed with the tension of hope weighted against fear. Until today.

Over the years we’ve worked with remarkable educators, therapists, support staff, and administrators, but we’ve never before partnered with a team of educators so cohesive as a community. One person can make a difference, but I’m learning it takes a village to honor true change.

Things are getting better.

I expect there will be new challenges, life is an imperfect performance of hope, but I’m ready to trust in your newfound sense of belonging and the generousness of our new community; it’s time.

Love, Mom

giving & receiving

August 31, 2015 § Leave a comment

Throughout our move I have been humbled by the generosity of others; close friends and companionable acquaintances have consistently shown up in the disorder of our need and stood beside us, actively helping us process the demands of our choice.

On days when I could not see my own needs for the chaos of our work, others provided comfort and care with meaningful offerings of purposeful aid. Meals and muscle, pet care and child’s play; there was no false pride or martyrdom, no posturing of strength in stubborn refusals in my acceptance. I recognized the kindness in each offering and learned a new language of strength by honoring my limits.

I had previously assumed my independence was a greater measure of ability, priding myself on self-sufficiency. I similarly judged others for decisions that placed them in a position of vulnerability with passive aggressive criticisms that were directly correlative to their need and my expectations of accountability.  Strength is not so easily measured by need or ability.

For all the years I said “no” to an experience because the unknown demanded vulnerability; for every criticism I privately harbored for someone else’s display of need; for every cautious excuse that allowed me to disengage from uncertain success – I misvalued my community and my worth.

Friends do not wait for permission to love one another with acts of care, we fill our arms with efforts and our hearts with an openness that leaves room enough in our expectations for imperfect choices. This is what I have learned over long days of worries and endless to-do lists. We are stronger together.

 

chain reaction

April 18, 2012 § Leave a comment

Today I attended a presentation at my son’s school where students were challenged to actively nurture a school culture based in kindness, compassion, and respect. Challenges included looking for the good in others, setting goals, choosing positive role models, and embracing forgiveness.

The presentation was based on the life of Rachel Scott, a young girl whose life was cut short in the tragic school shooting at Columbine High School on April 20, 1999. Throughout the video presentation Rachel’s family members and peers paid tribute to a young girl whose words of wisdom and good deeds left a legacy of kindness in the wake of tragedy.

Rachel’s Challenge strives to replace acts of violence and bullying with interpersonal connections and goals. I celebrate any endeavor to inspire children to act in kindness and dream big. As a parent I believe we teach by example and I embraced this opportunity to identify ways in which I could model each challenge at home.

The first challenge asked the students to Eliminate Prejudice by looking for the best in one another; setting aside first impressions or unkind thoughts to actively look for the good in others. I tend to identify things I admire about others, friends and strangers, but the speaker cited an example I had not considered: people who bring out an instinctive negative response. I considered people whose company makes me feel negative and challenged myself to display kindness towards those individuals I tend to withdraw from.

The second challenge is to Dare to Dream by keeping a journal and setting goals. I honor the theory that we draw dreams into reality by visualizing them and mapping our journey to fruition. In this way I celebrate encouraging children to give voice to their dreams. Even I could substitute I will for I wish; using language to claim accountability for my goals.

The third challenge is to Choose Positive Influences, drawing on positive role models for success. I am fortunate in that I am surrounded by friends and family who inspire me. As my children’s role model I must consider how my choices and language communicate success. Where in my life do I set aside goals for comfort?

The fourth challenge asked students to use Kind Words and show Little Acts of Kindness. I am challenging myself to be mindful of overlooked opportunities to be kind, bad days when I sacrifice my best for good enough.

Before ending the presentation the speaker asked the audience to close their eyes and envision a time when they had acted unkindly, to own that moment, and move past it in forgiveness with intent to act in kindness. The speaker also asked those treated unkindly to let go of feelings of anger weighing their spirits in negative emotions. Then we were all called to leave old harm behind us and move forward.

The final challenge was to start a Chain Reaction, demonstrate kindness and pay it forward. With that in mind I am sharing these simple thoughts and challenging anyone reading this to consider how they might become a link in a universal chain of kindness in words and deeds.

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