to my son

February 17, 2015 § Leave a comment

There is a quiet grace in the eagerness of your vulnerability, the unabashed honesty of your emotions. I wonder if you understand the rarity of your openness, your willingness to step outside a prideful posture and stand unguarded in your tenderness.

Yesterday I watched you gather your worries and fears into a language of need; washing your smile in a flood of tears you purged the thoughts that confined your smile. In that moment the years tumbled away and you looked lost in unhappiness that hung from your frame like a child dressed up in the ill-fitting garments of problems too large for your experience.

Sweet boy, for all the language of expectations that dictate the responsibilities of a young man we must remember to honor the fleeting fragility of your childhood. Thank you for trusting me with your worries, that I might better guard your smile.

Love, Mom

a day off

January 20, 2015 § Leave a comment

It isn’t unusual that I wake to a Tuesday that feels ominously like Monday, the week’s routine unfolding with the grinding resistance of denial. Likewise, I have misconstrued a Thursday for Friday as I race enthusiastically toward the weekend’s leisure. It is, however, rare that I overlook a day entirely.

This morning I woke my son with Monday’s apologies for Tuesday’s early morning beginning. I chased him through breakfast with reminders and hurried him towards school with empty gestures of routine; making it half way home before my sleepy teenager called to remind me of the day, a well documented day off from school.

It was a fully conscious, bright-eyed conspirator that dismissed my error, sneaking back into his room until his younger sister left for elementary school so that she wouldn’t feel excluded from his good fortune. Suddenly, today feels a little like a misplaced Saturday torn from a day long past, when it was only the two of us exploring nothing in particular with all the time in the world.

sandcastles & schedules

January 13, 2015 § 2 Comments

This past week we began the process of choosing classes for our son’s coming academic year, stacking the prerequisites and sifting through electives. The dialogue that accompanies this effort is staggering, assumptions and expectations distorting perspective.

To my son,

As you arrange your goals for the future into choices, remember that building dreams around an academic schedule is a little like building a sandcastle near the surf; change will sweep across the landscape of your building blocks undermining the most architecturally sound design and demanding you draft new plans.

Adults, educators and parents, speak in heady hypotheticals and hypocritical certainties; what ifs and statements of if this, then that. We portray academic performance as a precursor for success and happiness, but I have known too many people for whom this was not sustainable to promote false promises.

You may do well academically and that performance may help you to attend a school which may afford you a career you enjoy and a generous income. You may not.

As we look to the choices for the coming year, I want you to hold tightly to the language we use to discuss opportunities over certainties. No matter your intelligence or accomplishments, success is a matter of effort and opportunity; one is not exclusive of the other and neither guarantees certainty.

Instead, I’m gathering hopes for the character of a life you are shaping.

I hope you pursue academic interests that spark passion, but I also hope you try something unexpected; sometimes we have to venture past the familiar to recognize certainty. Begin now. Choose experiences that will challenge your knowledge and stretch your comfort zone.

I hope one day you will find work that sustains your dreams, but I also hope you find work that will sustain the expense of your reality. It is hard to dream when your head is congested with worries. Save well and spend wisely.

I hope your days have a purpose that feeds your sense of worth and connects you to your community with meaningful contributions. Divide your time and attention in a manner that creates balance.

I hope you surround yourself with individuals who measure wealth without monetary markers; things cannot fill the spaces of our heart or mind. Guard those relationships that are founded on mutual respect and void of materialism.

Whatever you study or aspire to become, cultivate the person you want to be first and allow that certainty to inform your choices.

Love, Mom

 

one

November 22, 2014 § 2 Comments

We began our son’s high school experience with a clumsy, unapologetically honest introduction. As a student on the autism spectrum he is a contradiction of expectations and assumptions; his needs are misread as predictably as his ability to perform consistently. I walk a delicate balance, informing teachers and support staff of the invisible needs that shadow my son’s experiences and permitting him greater autonomy to speak for himself.

Somewhere in the language of advocating for my child as a student with special needs, emotion becomes muddled with words weighted in clinical knowledge that sometimes consumes my vocabulary. Years of navigating a second language of need has created a sterile dialogue that suffocates the lightness of my love with terms that cannot contain the colors of my child’s personality.

Each year I hope for someone who speaks the same language of care, but celebrates the complicated prism of my child’s spectrum of light.

Yesterday the person I had been looking for stepped more clearly into our path, speaking the language of our need with a smile. More importantly, he volunteered to partner with the spectrum of teachers whose worries are as diverse as their personalities to help inform my son’s assumptions with practical exercises in deconstructing the social language of his days as they create a new path toward greater independence.

Within this singular exchange I was able to reshape my words from an armor of advocacy to a partnership of possibility; infusing the language of need with a joyful celebration of my child’s spirit. One person has changed the entire landscape of our experience, bridging fear with hope.

On this, the eve of our Thanksgiving holiday, I am counting my many blessings and celebrating the power of one.

seeing ghosts

October 29, 2014 § 2 Comments

Yesterday a note from my son’s aide raised concerns over an observed detachment from academics. The lines of worry were repetitive, missing content and wasting time. I’m not surprised, it is a well-rehearsed slight of hand. My son is disappearing from his classrooms; escaping into distraction.

Instinctively, I began to identify pieces of my son’s diagnoses that would inform the familiar complications that accompany each school year. I could identify the absence of sensory opportunities or itemize the need for particular modifications that might ease specific challenges unique to my son’s needs; offer incentives or suggest consequences. Instead my attention was drawn to the landscape of his support and wondering where he might connect; less concerned with the machinery of his accommodations, but unsettled by the absence of connectivity to the interpersonal experience of his days.

I realized with haunting clarity my son isn’t looking for a reason to try, he is looking for someone who cares.

You can follow his path to invisibility in the relationships he could not cultivate across years of broken school day experiences. Teachers, secure in his ability and knowledge, would allow my son to sit at his desk left to his own interests. There were endless notebooks filled with ideas and curiosities; sketches of inventions and notes on topics to research in place of assignments. Classroom aides, without essential training, misunderstood challenges and innocently, without malice, failed to develop successful resources. A chorus of recycled compliments would glean over complicated pieces of struggle with generic statements of intelligence suffocating expressions of need with a weighted assumption of ability. Add to this repetitious activities without the richness of purpose undermining the value of effort and unkindnesses of peers overlooked by adults who were failed guardians of compassion and you inform a method of survival by way of invisibility.

Of course, I wear my blame in the tender places of guilt; consistently second guessing unspoken unhappiness with misplaced confidence. It is a community that erases a child’s spirit and I am my son’s first witness to fading. Hindsight is an unkind mirror, exaggerating previously overlooked details now obvious in their importance. I leaned too much against reassurances and danced around uncomfortable conflict, leaving my son stranded in a place of vulnerability painfully exposed. I could have done better. Instead, I modeled a quieter place of invisibility and acquiescence.

Motherhood has made me humble, more honest in my fallibility. On the best days it also makes me brave.

Worries and guilt are poor motivators, but hope is a contagion for possibility. Last night I conjured the little boy who used to shadow my days, creating a safe place to talk about his days without the markers of success that sometimes eclipse the emotions of our experiences; setting aside academics for an opportunity to bear witness to my son’s joy. Filling in the shape of his days.

With a luxury of time I took him to the place we used to walk before our footsteps were rushed by outside commitments. I let him choose our dinner and we lingered over the table in conversation rather than bundling our food more hurriedly into take out containers. We perused book shelves for an anticipated title and curled up in companionable silence to enjoy our new books. More importantly, I apologized for looking the other way while pushing him into expectations that weighted his enthusiasm for learning against others’ assumptions.

It was a small offering, an imperfect beginning, but it drew a smile that gave form to something we can both believe in.

to my son

September 7, 2014 § 6 Comments

I’ve been writing your sister more often of late, but my mind holds a space for you despite the deceptive inequality of letters. I see you struggling a bit to find your way, the determined quiet that speaks to your ever evolving independence. I collect your stories and note your choices, suffer your worries and applaud your conviction, temper my counsel with familiar boundaries.

I am standing a little further in your shadow, still ever mindful of your experiences. The truth is, some days the best I can do is offer you less. There are mistakes and accomplishments more fully measured without my presence tugging the scale in one direction or another. Pieces of your story that must be written in your hand.

I’m still here.

Love, Mom

to my son

August 20, 2014 § 8 Comments

I like you. I wonder if I say that enough. Love isn’t something that I contrive to express; it is a fluid language that is ever-present. Liking you is a separate matter.

If you weren’t my son and we were choosing seats on this journey, I would want to sit next to you so that I could hear your thoughts and better watch your adventures. I would want to know the warmth of your friendship and the fierceness of your convictions.

I just like you. Period.

You move and speak at times like a cartoon whose ink has been blurred into curious action. This display of self sometimes garners unwanted attention but you are tirelessly comfortable outside the norm.

While some seek to impress others at the cost of unkindness, you are fearless in your forgiveness and loyal beyond reason. You harbor no grudges against friends or family and you accept those you love’s faults unconditionally.

Every day you question the world around you in search of answers to endless questions. You see broken logic with the same eyes that find beauty and look inward to weigh your experiences for self truth.

You leap into uncertainty with confidence, prepared to succeed and willing to fail; able to laugh and comfortable enough to cry. There is a brave, unapologetic honesty to your emotions that allows you to be fully present.

I so often look at you and wonder at my good fortune that you are mine to love and yet I exhaust more time reminding you to pick up laundry than I do acknowledging your character. I’m going to work on that, because I want you to know I don’t just love you, I genuinely like you.

Love,  Mom

to my son

July 11, 2014 § Leave a comment

You are my favorite antagonist; the most eloquent of laments outlining transgressions of comfort. Your language of inconvenience in suffering foolishness is matched only by the nonsensical comedy of errors that accompany exercises in common sense.

The most beautiful pieces of your awkward insistences are your emphatic statements of worldly knowing bound by experiences that most certainly are older than your years. You tether yourself tightly to a sense of security only to leap with messy abandon into a moment’s whim. You are a walking symphony of poorly harmonized instruments and the noise of your conviction and curiosity are a source of joyful amusement.

I hope you are always as confident in your beliefs as you are in your boundaries, but that you will invite opportunities to exercise greater humility and generosity that you might better enjoy the humor and wisdom of fallibility.

Love, Mom

measure of joy

June 1, 2014 § 5 Comments

I am cautious in my exuberance. Academic accomplishments are celebrated with words of appreciation rather than gatherings or gifts. I try to center my attention on the progress of effort over accomplishment; careful not to foster an expectation of grandeur in my children’s minds. There have been so many moments of carefully contrived simplicity that I have begun to wonder if I am undermining the magic of more.

Recently I caught myself rebuffing the formal activities thoughtfully coordinated by my son’s middle school to celebrate graduation; a term I hold with reverence as an accomplishment better reserved for high school and college. The energy I exerted pushing against the tide of anticipation was exhausting and contradictory to the spirit with which I embrace spontaneous moments of celebration for everyday measures of joy.

I was tallying gestures of celebration in place of gratitude for countless experiences that lent immeasurable growth. These past three years have been substantial and this ending leaves a legacy of friendship and accomplishment far greater than academic markers. We have navigated crises with strangers who became friends and we have grown collectively into readiness for new challenges.

I cannot celebrate friendship so mildly for there is no greater gift. As we move through the celebration and ceremony of the coming week I am embracing with unmeasured exuberance the quiet enduring blessing of our community of friends and this chapter in our story. More words of thanks, more excuses to gather in celebration, more moments of appreciation for gifts that appear in our lives wrapped in everyday experiences.

 

to my son

May 16, 2014 § 10 Comments

High school waits on the other side of summer, I feel this milestone with the tenderness of motherhood and the wisdom of hindsight. For as much as we caution the value of hard work and academics, these years will bring emotional experiences that teach more of self and selflessness, community and individuality.

Somewhere between classrooms and homework, extracurricular interests and family obligations you are going to fall in love and out of friendship; you will come to see others more clearly and your sense of self will be challenged. If I could lend you counsel in three simple parts, it would be this:

Look up at the world around you and navigate discomfort for an opportunity to engage. Make a new friend, try a new activity. The greatest regrets are formed from missed opportunities. Dare to look silly and feel overwhelmed.

Hold tightly to those relationships where you can laugh and cry with the same unfiltered abandon. Make room, too, for others to be unapologetically imperfect. Care for these relationships, they will ground you in humility and gratitude on days you feel lost.

Always trust the little voice that whispers caution. There will be moments when you tempt fate with difficult lessons, this voice will tether you to safety in the face of harm and create an opportunity to borrow strength. We are only a phone call away.

If you are still listening:

Remember we love you. These years are a comedy of awkward chaos, emotions tangling the simplest of intentions; for us, too. Your father and I will look silly and seem unfair, our advice will sound comical and useless through the filter of teenage angst. When you cannot hear our logic, look for signs of love in the boundaries that inform your independence. I will try to see your ability through your errors and give you room enough to stumble. Love you.

Mom

 

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