to my son

April 30, 2014 § 2 Comments

While your sister twirled toward an evening with dad, last Friday we ventured out for air scavenging the lingering hours of the spring day for food and conversation. These companionable moments, just the two of us, are a happy indulgence.

On this occasion I centered my attention in celebration of a recent increase in your independence. I pelted you with compliments and, to my surprise, you became quiet. As I pushed forward, into the silence, with saccharin expressions of thankful exuberance you retreated further. Chasing your silence with the noise of my joy I tried to retract you from your corner until your words stilled me.

You explained that the more I spoke of your success, the more you felt suffocated by the uncertain momentum of your accomplishments. Initially I baulked at the suggestion that my praise might undermine your progress. It was only when I set aside the filter of my hopes as your mother that I could more clearly see the honesty in your teenage confession. In your vulnerable forthrightness, you translated a subtext of judgement that belied my contentment.

Rather than celebrating your accomplishment you wanted to stand simply in a place of self-awareness. Under your breath, almost to yourself, you confessed it felt good to be productive. This was my favorite moment, the casually measured acquiescence of your accomplishment. The greater joy is not the pride of others, but pride in self untethered to other’s expectations.

Love, Mom

a birthday wish

April 16, 2014 § 10 Comments

To my son,

You came into this world in your own time, disrupting expectations and creating opportunities for faith. As quickly as you arrived, you were gone; born prematurely, in a facility unequipped for your care, we were separated so that you could thrive. No one placed you in my arms, instead our first hello was first a goodbye.

I waited eagerly that first morning, anxious to acknowledge the tiny spirit who had previously inspired joy and curiosity as my body changed form to accommodate your enthusiastic movements. Then, in our first conversation, I found myself speaking in a language weighted by silence. I could not thread together the volumes that seemed to sustain the seconds between us.

It is a humbling love, fiercely vulnerable, that tethers a mother and child. Words seemed trite and inadequate in those first moments, instead I marveled at the miracle of your tiny fingers and wise gaze. I looked past the wires and machinery that signaled weakness seeing only beauty and strength.

Then, I let go; trusting that you would be okay and recognizing the limits of my control. Today I asked the same of you.

On the eve of your birthday you begged me to dismiss you from school, a place sometimes burdened with unkindness and discomfort. I struggled against wanting to shelter you from your fears and choosing a path that would honor my faith in your strength. Rather than hide you from harm, I asked you to let go and trust in the possibility of kindness.

This is my birthday wish for you:

I hope you begin always with faith in possibility. In some of our most challenging hours we find the source of our strength is greater than the cause of our worries. In moments outside our control there is an opportunity to let go of fear or hold tightly to doubt; it is always better to embrace possibility than hide in the shadows of insecurities. When calculating risk, count first your accomplishments and multiply them by your willingness to engage risk. Failure and harm are inevitable but joy and accomplishment are impossible without first risking both.

Love, Mom

 

 

exhibiting self

April 1, 2014 § 5 Comments

There is an image that lingered in my mind’s eye last night, long after the day’s sun and gentle breeze carried me off to sleep. It is of my son in the noisy, bustling chaos of the zoo cocooned tightly, patiently observing the flow of traffic snaking around him. In the instant he settled into a ball a stranger’s hand gently squeezed my arm in a moment’s unspoken connection. I turned and saw genuine understanding reflected in her smile as we watched my son stationed sentry, guarding his space in the rhythm of families pulsing around him in every direction.

Over the years I have nurtured my son’s unique sense of self while endeavoring to foster understanding of the world around him; directing his gaze both inward and outward. Yesterday, just far enough outside the influence of motherly prompts – nonverbal or whispered instructions to stand or seek a bench, he seemed to instead inform my gaze creating a picture of wellness in a world unencumbered by his individuality. His very posture answered my uncertainties, reassuring my doubts and begging space. There was a quiet confidence that underscored his contentment; completely at ease in his indifference to difference.

I tried to rectify the memory of my son’s younger self with the image of the young man whose shoulders now stretch above my own. He is a harmonious balance of gentle power; still child and not yet man but fortified with a sense of self and tempered by a curious eagerness to engage with his world. This was the gift of sight that lingered in my mind, a little boy and young man making space in the world for self and a kind stranger weighing me in a silent reassurance, redirecting my expectations with a greater sense of appreciation.

diagnosing silence

March 16, 2014 § 4 Comments

This past week I found myself caught in a moment’s pause, trying to give voice to faith in the clinical space of our doctor’s office. From the earliest stages of our son’s diagnoses, there was an implicit trust in the wisdom of our doctor’s experience and knowledge. Just as we introduced our child to this stranger in search of explanations, we were introduced to unfamiliar needs that would come to shadow our experiences lending insight to intimate challenges.

Last Wednesday, in the familiar space of our doctor’s office, I felt doubt in expertise and certainty in things unproven. The intangible instincts of parenthood informed by situations and experiences catalogued with care became evidence of something greater than the volumes of medical knowledge slumbering in our company. Nudged from silence into conflict I heard my voice cautioning our doctor’s certainty with my own; respectfully, but with faith in something unproven.

Grand ideas and daydreams too easily dismissed as symptoms of a disease were in sharp contrast to memories that hint at knowledge outside our understanding. Our doctor dwelled on education and resources as distinguishing factors between fact and fantasy; an ability to physically manifest the ideas our son shares so enthusiastically imperative to a clinical determination.

I stood in the undefined place of possibility, recalling ideas that have all too often appeared years after our son’s suggestion in scientific magazines that litter our home; inventions that even without an advanced education he could predict and without resources he could imagine. I heard echos of conversations past, shared with professional scientists I could not understand, but who met our son’s questions respectfully with interest and appreciation. My husband added his voice to these memories and I watched as our doctor joined us, mutual respect and appreciation for the individuality of our son’s unique abilities and needs have created a place of possibility in place of clinical certainty.

Days later this exchange still lingers in my mind, cautioning against silence in place of certainty and the threat of misunderstanding unfamiliar experiences as something incorrect. Watching our doctor dance between certain diagnosis and an uncertain error, I gave thanks for humility in fallibility. Looking to our son I am reminded of the beauty of our dreams and the trajectory of a life unbound by predetermined boundaries.

To my son, There will be moments when the momentum of others’ assumptions and experiences will inform understanding. You must not be afraid to push against certainty with the force of your own doubts. The world is full of those who cannot imagine change without first knowing proof, do not be afraid to move in certainty against their doubts. Love, Mom

to my son

March 7, 2014 § Leave a comment

This morning we sat among familiar faces and new, planning for the academic year to come. It was our second of two, thoughtfully attended meetings in preparation for your transition to high school.

In the moments before you joined us, I listened to those who have  shared your days these past three years introduce you to our high school coordinator with words of kindness for your character, confidence in your ability, and concern for your well-being. In turn I heard the echo of our experiences past in the voice of shared expectations for the future.

When you joined our discussion I marveled at the young man you have become. With each gesture I remembered small exercises in etiquette, a toddler’s hand reaching out in greeting and  eyes intentionally seeking acknowledgment in small demonstrations of respect. I saw a young man fighting nerves in recognition of the weight of this milestone, endeavoring to speak conscientiously of his doubts and hopes.

You spoke of the joy you have found working with others and looked eagerly to create this experience of community in your future. When evaluating choices for opportunities to explore new interests you spoke enthusiastically and chose intentionally. You asked questions and provided answers while I sat quietly, giving you room to use the voice of self-advocacy your father and I have endeavored to help you cultivate.

Later, when you replay this moment in your mind gauging your words and reflecting on your decisions, I hope you remember the faces of the individuals in your company who have collectively and actively shared in our journey; steadfastly supporting you for the unique spirit you are. I also hope you see yourself in your plans and pause to honor the importance of presence in creating your future.

Love, Mom

direction

January 12, 2014 § 4 Comments

This year each day has felt tethered to a moment I could no more escape than I could ignore; the universal worries and intimate hopes that accompany a common childhood milestone exaggerated and informed by past experiences unique to our story.

Soon, on a day yet undetermined, we will gather as a family among educators, administrators, and support staff to begin our son’s formal transition from the familiar halls of middle school to the personal expectations that will manifest as an introduction to his high school experience. This occurs in a series of well choreographed routines as dictated by our son’s Individualized Education Program; a necessity of diagnoses that determine academic need.

I could note here the specifics of our son’s diagnoses, but each naming seems to undermine the complexity of his character. Instead I will introduce you to the process I engage each year to inform the language of his ability. Prior to each meeting I outline the resources that create success, the struggles that inform growth, and areas of risk alongside exceptional ability. My husband shares his perspective and our son outlines his goals so that we speak neither of or for our son, but rather to his well-being academically and emotionally.

Over the years I have come to seek counsel from experts whose experiences are both professional and personal in an effort to increase awareness and identify potential. Administrators and educators, parents and advocates, friends and strangers help me navigate choices whose weight is greater than my knowledge. This year I have drawn from these same voices until the collective din of contrasting counsel was deafening.

Yesterday, in the sleepless early morning hours, I let go of worries and wondering for a  self-indulgent exercise in escapism. I closed my lap top and snuggled into my husband’s company to watch a movie. He had chosen a title unfamiliar to me, one that is completely irrelevant to this story, with the exception of one line in the movie’s dialogue that interrupted my distraction and sent me scurrying for a scrap of paper.

Just because you’re lost doesn’t mean you say your compass is broken.  – Anthony Hopkins, “The Edge”

This language of direction could not have come at a more necessary moment. A gift of perspective guiding me to center myself in simple sureties and reminding me that we have the right to choose our own path. As others map possibilities by our son’s need, we have the burden and benefit of choosing a path that honors his potential.

I am no more certain of the days to come. This experience is one of humbling success and heartbreaking struggles; we grow into each moment uncovering rare souls who recognize the blessings within our challenges and walk with us in moments of adversity, learning more about ourselves as we evolve personally to cultivate resilience.

For today I am content in what I know and cannot predict, certain only of the love that guides me and the company of remarkable souls who accompany me on this journey. Instead I will gather my words and endeavor to breathe our son’s voice into the sterile language that occupies the dense pages of his Individualized Education Program least he is lost in assessments that cannot speak to the beautiful eccentricities of his gifts.

to my son

January 3, 2014 § Leave a comment

I cannot count the days I have wished you greater compassion and friendship among your peers. On days you ached with a friend’s unkindness or a stranger’s ignorance I stood beside you marveling at the forgiveness and faith that would propel you into new experiences ripe with old challenges.

I wish I could say that my words in these moments give you peace or hope, but instead it is your actions that inspire me.

This year you befriended someone another may have overlooked or misunderstood. You didn’t extend a hand of friendship out of obligation or expectation, you saw in another’s smile a moment of joy and it was enough to give what you needed most. Humbly and gratefully you found what I could not give, learned what I could not teach.

Love you. Mom

measuring up

November 19, 2013 § 3 Comments

My son has been chasing my shadow, eagerly aligning his shoulders with my own in a race to grow into an expectation of stature.  Amused by his enthusiasm, I measured myself against the kitchen door frame long graffitied with names and dates; allowing each child to gauge themselves against my name. Today, as my son shuffled past me, I knew even before my husband drew a new line that my son’s name would fill the space beside my own. In much the same way I marveled at his first steps I now found myself disoriented by the evidence of time, grateful for the space between his name and his father’s and the smaller shadow of my daughter’s form.

boundaries & burdens

November 13, 2013 § 2 Comments

Yesterday a misunderstanding between my son and a peer created worries that crawled under my skin, an irritation of thought that unsettled my mood. I gathered my certainties and uncertainties trying to analyze the burden of blame and map personal boundaries. More than the moment of misunderstanding, I was torn between instinct and intellect. The need to defend my son and respect my most intuitive assumptions of his character were challenged by the reality that his age comes with expectedly unexpected irrational and extravagant errors of self-expression.

This morning, while I waited for word of resolution, I considered the unspoken messages of motherhood that accompanied this experience from the vantage of my absence. In letting go I was silently announcing my faith in my son’s ability to navigate others’ uncertainty; to speak for himself and respect another’s perspective essential skills to this age of clumsy expressions.  In respecting my son’s boundaries and honoring his burdens I held tightly to my sense of his character; reaffirming a quiet confidence in the little boy who moves with an eager gait towards independence.

Looking ahead to our evening routine I am curious to hear my son’s interpretation of his experience without expectation of interference or assumption of my authority, but rather with a greater consciousness for his ability in the space of his day.

theories & relativity

October 24, 2013 § 2 Comments

In countless ways my children are honest barometers of my behavior; they mirror conduct and echo language, question boundaries and underscore inconsistencies. Wise in the uncluttered wisdom of youth, they challenge me with their uncertainties as they explore the world around them forming independent beliefs relative to their experiences.

This past weekend my son intentionally stationed his laptop in the space next to mine under the pronounced pretense of keeping me company while we completed independent tasks. Once our computers were stowed to the side, he asked if I thought our use of technology validated Einstein’s theory that humans might substitute personal interaction for the convenience of technology.

He phrased his question in such a way that it sounded to my ear as if he were quoting another, who in turn was attempting to quote Einstein. The reference had the tone of a profoundly prophetic but suspiciously false statement; a subtle manipulation disguised as fact. I chose to look beyond the accuracy of the quote, holding tightly to the question beneath the reference relative to the child challenging a theory with his observations and beliefs, experiences and values.

A seeker of truths and scientifically minded soul who is a passionate advocate of technology, my son moves through his days hyper-attuned to social mannerisms with the practiced but clumsy authority of one immersed in a second language. Social skills are frequently a source of frustration, exhaustive and contradictory. Technology more often offers an escape from the muddled gray area of social behavior. For my son to introduce the subject of technology as a substitute for social interaction while subtly demonstrating with his behavior an appreciation for my company over screen time was a moment worthy of pause.

There were no cookie cutter categories of correctness, no trite summation of the conflict or tidy balance of pros and cons. There were, instead, instinctive reactions to and interpretations of appropriate use of technology. Our questions were fluid and our answers open-ended.

In light of our conversation I find myself more consciously choosing the company of those in my presence, challenging myself to maintain a mindfulness of the delicate balance between intimate personal exchanges and the enrichments afforded our experiences through responsible use of contemporary conveniences; more in tune to my children’s perspectives as they hold a mirror to my choices relative to their questions.

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